‘Miracle boy’ returns home after year in hospital

‘Miracle boy’ returns home after year in hospital

A child has been dubbed a “miracle boy” after returning home from the hospital for the first time in a year after suffering cardiac arrest and being diagnosed with a rare heart condition.

Cairon Barry-Edwards was six months old when he was admitted to Children’s Hospital Southampton after suffering cardiac arrest at his home in Reading, Berkshire.

He was diagnosed with cardiomyopathy – a rare disease of the heart muscle that makes it difficult to pump blood to other parts of the body.

Doctors on several occasions prepared Cairon’s family for the worst due to the severity of the illness, but now he has managed to return home.

Cairon, who is now 18 months old, was placed on the heart transplant list while being treated in pediatric intensive care and high dependency units, although the chances of a successful outcome were considered low.

A spokeswoman for University Hospital Southampton said: “Cairo’s weight and age, combined with the likelihood of a donor organ being available and then successfully transplanted, meant the odds were stacked against him.

“But determined doctors refused to give up and an intense heart failure treatment plan was devised for Cairon, using the experience of a team of doctors, nutritionists, nurses and pharmacists, who aimed to find a way to help him gain weight and at the same time finding a suitable drug to help support his heart condition and give the young man the best possible chance of survival.

“Due to heart failure, Cairon was not gaining weight like other children his age because of severe discomfort in his intestines every time he switched to powdered milk.

“At high risk of complications, the team developed a plan to nourish Cairon using a method called parenteral nutrition – feeding him directly through his veins, completely bypassing his digestive system and therefore taking the pressure off his heart.

“Once Cairon started gaining weight, cardiologist Tara Bharucha began the long process of finding the right drugs to treat him.

“And with the concurrence of Cairon’s mother, Dr. Bharucha chose to test a new heart failure medication called Entresto, which unlike his previous medication, can be safely administered at home.”

The Doctor. Bharucha said: “Entresto has not been widely used in children and Cairon is believed to be one of the first children under one year of age in the UK to receive it. He is certainly the first in Southampton.

“It is not something suitable for all young patients, but we were hoping it would benefit Cairon and we are very pleased with the result.”

She added: “When Cairon came to us he was a very poor boy and there were several times when I had to discuss with his mother the possibility that he might not survive. But he surprised us with his determination and willpower – he really is our little miracle.

“We are all very happy that we were able to remove him from the transplant list for now and finally be able to send him home.”

Cairon’s mother, Shantelle, 40, who hasn’t left her son’s side since the day he was admitted, said: “It’s been a crazy year, a little confusing actually. I haven’t been home for 12 months and I’ve only seen my other kids, Tafari and Ayanna, a handful of times, but you have to move on.”

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